The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.
The film is an intimate record of a difficult period in the life of the creators. The main character, eight months pregnant, was diagnosed with aggressive breast cancer. The dramatic event disrupted the joy associated with the birth of her child.
